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What is this research study about?

This study aims to understand how the lived experience of people on the autism spectrum (e.g., age of diagnosis, experience of discrimination) influences how and when they choose to identify as being on the autism spectrum, and any influences this has on well-being and support seeking.

Why should I help?

The research team believes that your participation can provide them with useful information about a) how an autistic person’s life experiences can influence the formation of an autism identity; and b) how this impacts on an autistic person’s decisions about how to identify, about when to disclose that one is on the autism spectrum, and also on their well-being.

A better understanding about how an autistic person’s life experiences may influence their decisions about disclosure and support-seeking will help professionals and service providers to design and deliver supports that enable autistic people in their work and study.

If you decide to take part in this study, you will receive a $10 Kmart voucher as compensation for the time that you will spend as a participant in this study.

Who can take part?

You are invited to take part in this study if you are:

a) an Australian citizen or permanent resident who is currently living in Australia; and

b) you are aged 18 years or more; and

c) you have are received a formal diagnosis of being on the autism spectrum.

Who is conducting this study?

This study is led by Dr Simon Bury (Postdoctoral Research Fellow) from the Olga Tennison Autism Research Centre, La Trobe University, with Dr Jennifer Spoor (La Trobe University), Dr Darren Hedley (La Trobe University) and Professor Michael Wenzel (Flinders University)

What will I be asked to do?

If you decide to take part in this study, you will be asked to complete an online survey. The survey will ask questions around how you learnt about autism, how you perceive autism, perceptions of stigma or discrimination, special abilities, willingness to disclose autism, and mental well-being. It will take approximately 20-25 minutes of your time, on one occasion, to be part of this study.

When and where?

Participation is online, and you can complete the online survey at a time that suits you, from now up to 25 August 2019, when the survey will close.

To take part in the study:

You can read the information sheet and access the online survey by clicking this link:

To find out more about the study and register to participate please contact Dr Simon Bury (Olga Tennison Autism Research Centre, La Trobe University)

Please feel free to forward this information to others who might also be interested in participating.

Phone us to discuss how we can help you.

Call 1800 277 328

Send us a message and we'll get back to you.

Enquire with Autism Spectrum Australia