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What is this research study about?

This study aims to understand people’s experiences of receiving an autism diagnosis in adulthood, factors related to age of diagnosis, beliefs about living with an autism diagnosis, and experiences of support.

Why should I help?

We hope to use information we get from this research study to help other adults who undergo autism assessment and diagnosis. The findings could help us to make recommendations to health professionals to promote recognition of autism and tailored support after diagnosis for adults.

Who can take part?

You are invited to take part in the online survey if you are

  • 18 years or older
  • Have an autism spectrum diagnosis (including Asperger’s syndrome or PDD-NOS) or think you may be on the autism spectrum
  • Living in Australia
  • Or a carer of a person with intellectual disability whose autism was diagnosed in adulthood or is suspected of being on the autism spectrum

You are invited to take part in the interview if you are

  • An Australian adult or carer of an adult who received an autism spectrum diagnosis in adulthood

Who is conducting this study?

This study is funded by the Cooperative Research Centre for Living with Autism (Autism CRC) and the Australian Government Research Training Program.

Researchers from University of New South Wales and La Trobe University are conducting this study.

What will I be asked to do?

If you decide to take part in the online survey, you will answer questions about yourself, your pathway to autism diagnosis, your attitudes and beliefs about the diagnosis, and your experiences of support during and after diagnosis.

If you decide to take part in the interview, we will talk to you about your experiences of support during and after your diagnosis of autism. This could be done face-to-face, via telephone, online video, Skype instant messaging or email depending on your location and preferences.

When and where?

You can complete the online survey on your own device in any location with an internet connection.

The interview will be at Randwick campus, UNSW Sydney if you choose to meet us face-to-face. Otherwise you can talk to us on the phone or online at any location.

To find out more about the study and register to participate:

To participate in this study, please click on the appropriate link below.

Survey for adults:

Survey for carers:

Register for interview:

Please feel free to forward this information to others who might also be interested in participating.

Phone us to discuss how we can help you.

Call 1800 277 328

Send us a message and we'll get back to you.

Enquire with Autism Spectrum Australia